Most people with fibrous dysplasia don't have any symptoms and are diagnosed when an X-ray taken for another reason reveals signs of fibrous dysplasia.
However, in some cases you or your child may experience pain and other symptoms that lead you to schedule an appointment with your family doctor or your child's pediatrician. In some cases, you may be referred to a doctor who specializes in treating bone and muscle injuries or disorders (orthopedic surgeon).
What you can do
Before your appointment, you might want to compose a list of answers to the following questions:
- When did symptoms begin?
- Does any specific activity make the symptoms worse?
- What medications or supplements do you or your child take regularly?
What to expect from your doctor
Your doctor is likely to ask you a number of questions. Being ready to answer them may reserve time to go over any points you want to spend more time on. Your doctor may ask:
Jul. 08, 2014
- Have symptoms been continuous or occasional?
- How severe are the symptoms?
- Does pain wake you or your child up at night?
- Is the pain or deformity getting better, staying the same or getting worse?
- Fibrous dysplasia overview. NIH Osteoporosis and Related Diseases National Resource Center. http://www.niams.nih.gov/Health_Info/Bone/Additional_Bone_Topics/fibrous_dysplasia.asp. Accessed April 17, 2014.
- Goldman L, et al. Goldman's Cecil Medicine. 24th ed. Philadelphia, Pa.: Saunders Elsevier; 2012. http://www.clinicalkey.com. Accessed April 17, 2014.
- Longo DL, et al. Harrison's Online. 18th ed. New York, N.Y.: The McGraw-Hill Companies; 2012. http://www.accessmedicine.com/resourceTOC.aspx?resourceID=4. Accessed April 17, 2014.
- Tis JE. Benign bone tumors in children and adolescents: An overview. http://www.uptodate.com/home. Accessed April 17, 2014.
- Canale ST, et al. Campbell's Operative Orthopaedics. 12th ed. Philadelphia, Pa.: Mosby Elsevier; 2013. http://www.clinicalkey.com. Accessed April 18, 2014.
- Fibrous dysplasia. American Academy of Orthopaedic Surgeons. http://orthoinfo.aaos.org/topic.cfm?topic=a00083. Accessed April 18, 2014.
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