Coping and support

By Mayo Clinic Staff

Treating and preventing blisters and complications of epidermolysis bullosa can be stressful for you, your child and family members. The person with the condition may experience social isolation, and the family may face increased financial burden.

You may find it helpful to share concerns and information with families in similar circumstances. Ask your health care providers about epidermolysis bullosa support groups in your area. If joining a support group isn't for you, ask about counselors, clergy or social workers who work with families coping with epidermolysis bullosa.

Bandages for patients with epidermolysis bullosa can be expensive. Companies that make these bandages may be willing to work with your insurance company to obtain coverage.

Aug. 22, 2014