If you or your child doesn't have any signs or symptoms of heart trouble, the doctor may suspect a problem only if he or she hears abnormal heart sounds during a routine exam. Although many people have abnormal heart sounds, such as a heart murmur, they're usually not cause for concern. However, your doctor or your child's doctor will likely refer you to a doctor who specializes in treating heart conditions (cardiologist) to diagnose the cause of the abnormal heart sounds.
Because appointments can be brief, and there's often a lot of ground to cover, it's a good idea to arrive well prepared. Here's some information to help you get ready for your appointment, and what to expect from your doctor.
What you can do
- Be aware of any pre-appointment restrictions. At the time you make the appointment, be sure to ask if you need to do anything in advance, such as restrict your or your child's diet.
- Write down any signs and symptoms you or your child is experiencing, including any that may seem unrelated to the reason for which you scheduled the appointment.
- Make a list of any medications, vitamins or supplements that you or your child is taking.
- Request that a copy of previous medical records be forwarded to your current doctor, if you're changing doctors.
- Write down questions to ask the doctor.
Your time with the doctor is limited, so preparing a list of questions can help you make the most of your time together. For Ebstein's anomaly, some basic questions to ask your doctor include:
- What's the most likely cause of my symptoms?
- What kinds of tests do I need? Do these tests require any special preparation?
- I feel OK; do I even need treatment?
- What treatments are available, and which do you recommend?
- What types of side effects can I expect from treatment?
- Are there any alternatives to the primary approach that you're suggesting?
- I have other health conditions. How can I best manage these conditions together?
- Are there any activity restrictions that I or my child needs to follow?
- Is there a generic alternative to the medicine you're prescribing me?
- Are there any brochures or other printed material that I can take home with me?
- Can you recommend any websites for more information on my condition?
In addition to the questions that you've prepared to ask your doctor, don't hesitate to ask questions during your appointment at any time that you don't understand something.
What to expect from your doctor
Your doctor is likely to ask you a number of questions. Being ready to answer them may reserve time to go over any points you want to spend more time on. Your doctor may ask:
Sept. 17, 2014
- When did you or your child first begin experiencing symptoms?
- Have your symptoms been continuous or occasional?
- Does anything seem to improve your symptoms?
- What, if anything, appears to worsen your symptoms?
- If you or your child has already been diagnosed with Ebstein's anomaly, when and where was the diagnosis made?
- Has your child had any surgery or ever been hospitalized?
- What medications are you or your child taking?
- Attenhofer JCH, et al. Ebstein's anomaly. Circulation. 2007;115:277.
- Fuster V, ed., et al. Hurst's The Heart. 13th ed. New York, N.Y.: The McGraw-Hill Companies; 2011. http://www.accessmedicine.com/resourceTOC.aspx?resourceID=5. Accessed March 12, 2013.
- Crawford MH, ed., et al. Current Diagnosis & Treatment: Cardiology. 3rd ed. New York, N.Y.: The McGraw-Hill Companies; 2009. http://www.accessmedicine.com/content.aspx?aID=3649722. Accessed March 12, 2013.
- Silversides CK, et al. Canadian cardiovascular society 2009 consensus conference on the management of adults with congenital heart disease: Outflow tract obstruction, coarctation of the aorta, tetralogy of Fallot, Ebstein anomaly and Marfan's syndrome. Canadian Journal of Cardiology. 2010;26;e80.
- Zhao W, et al. Pregnancy outcomes in women with Ebstein's anomaly. Archives of Gynecology and Oncology. 2012;286:881.
- Dearani JA, et al. Surgical advances in the treatment of adults with congenital heart disease. Current Opinion in Pediatrics. 2009;21:565.
- Attenhofer Jost CH, et al. Outcome of cardiac surgery in patients 50 years of age or older with Ebstein anomaly. Journal of the American College of Cardiology. 2012;59;2101.
- Vogel M, et al. Ebstein's malformation of the tricuspid valve: Short-term outcomes of the "Cone Procedure" versus conventional surgery. Congenital Heart Disease. 2012;7:50.
- U.S. News and World Report Best Hospitals: Cardiology & Heart Surgery. U.S. News and World Report. http://health.usnews.com/best-hospitals/rankings/cardiology-and-heart-surgery. Accessed March 13, 2013.
- Grogan M (expert opinion). Mayo Clinic, Rochester, Minn. March 17, 2013.
- Dearani JA, et al. Strategies for tricuspid re-repair in Ebstein malformation using the cone technique. The Annals of Thoracic Surgery. 2013;96:202.
- Cook AJ. Decision Support System. Mayo Clinic, Rochester, Minn. April 3, 2014.
- Dearani JA (expert opinion). Mayo Clinic, Rochester, Minn. Aug. 12, 2014.
- Anderson HN, et al. Cone reconstruction in children with Ebstein anomaly: the Mayo Clinic experience. Congenital Heart Disease. 2014;9:266.
- Boston US, et al. Tricuspid valve repair for Ebstein's anomaly in young children: a 30-year experience. The Annals of Thoracic Surgery. 2006;81:690.
- Brown ML, et al. The outcomes of operations for 539 patients with Ebstein anomaly. The Journal of Thoracic and Cardiovascular Surgery. 2008;135:1120.
- Brown ML, et al. Effect of operation for Ebstein anomaly on left ventricular function. The American Journal of Cardiology. 2008;102:1724.
- Raju V, et al. Right ventricular unloading for heart failure related to Ebstein malformation. The Annals of Thoracic Surgery. 2014;98:167.
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