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Having family with diabetes has made me more aware of some of the "pet peeves" they have. Here are a few that my family members have shared with me as well as some that I've gathered elsewhere.
I'm sure that you can think of many more pet peeves and hope you'll share them.
So, how do we deal with them?
Please feel free to share your experiences.
Sara J. Carlson, R.N., C.D.E.
Peggy Moreland, R.N., C.D.E.
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I have neuropathy in both hands making it very difficult to manage the strips for the meter. Maybe someone could suggest what I can do other than relying on someone else to get the strip out of the bottle and into the meter.
Thanks so much for the tidbits. I have felt like this so many times. Somehow reading this makes me feel better. I can take on whatever the world pitches my way.
I have Type 2 diabetes, count carbs carefully, and have some issues with food and friends. First, don't think you can't invite me to dinner at your house or to meet you for lunch at a restaurant! I am quite capable of managing, and most people aren't aware of my status, which is my choice. And please, do NOT cook "something special" just for me! So many of those recipes are horrible, but I would feel obligated to eat the stuff because you made such an effort, while everybody else is enjoying something really yummy that would be a real treat for me. Cook anything you want to cook for everybody, and I will be very happy and keep within my requirements with no one the wiser. Remember, this disease is MY issue, not yours!
pet peeves....oh yeah....1...having to be hospitalized for something unrelated to dm and being told I have to disconnect MY pump in order for THEM to start an IV with insulin drip so THEY can control my blood sugars according to THEIR guidelines. HECK NO!! I've been controlling my own sugars and using MY own pump for so long that I've tweaked it enough to know what to and what not to do...NO ONE is jacking with my sugars!!! 2...AND when I'm slightly hypoglycemic and they want to give me orange juice WITH 2 sugar packets in it!! WHAT THE HECK!?!?!? I refuse it and they report me...lol..what a joke...oh and number 3...having to pay for supplies when I have worked for 30 yrs...with insurance....and illegals get it free.....enough said
type 1 diabetic for 42 yrs.my pet peeve I was in the hospital last week for a cronic sinus infection. The staff @ the hospital made me give my personel insulin to my husband to take home with him. Then when it was time for my injection, the hospital doesn't have the make of insulin that I take. They also take my BS levels & want to increase the amount of quick acting I take. I tell them NO! Don't change my dose that I take, It was very aggervating!
Being told by professionals that my diabetes isn't bad enough to worry about.
Um, when do I start to worry, after I'm 'bad enough'??
Maybe I'm lucky or I'm not around many jerks because no one has ever said anything ugly to me. I am fat, too. All my relatives have T2 so I knew I would get it. It probably would be best for me to lose weight but I don't think diabetes will go away. I am active and walk every day. I am just happy not to have had a bad experience with someone so ignorant and hateful.
stating that t2 is not inherited..people stating that you must eat to much or not the right items...not exercising..i was very active and ate right..i just found out im t2...i guess i was pre a few years ago and wasnt told by my dr..i have always been a go go person so stating that we are lazy and eat 6000 calories a day so we must have wanted this is ridiculous...know one wants this or asked for it..im still doing the right things and was told i have t2...i found out that i had/have family members that had or have it.. the only time my numbers have been low is when i was sick and didnt eat at all... if i dont eat i get headaches and feel like im going to get sick and get the shakes...but when i get that way and poke my finger my numbers are still not where they need to be...this is hard to control...so anyone who thinks this is easy and we asked for it needs to do more research... not everyone is the same and not everything works for everyone...we all have to find what works for us...
Too right about the name calling...given my family history , both types on both sides of the family, PCOS, thyroid, fibroids asthma(read cortisone ). What my Dr said was very apt when I was diagnosed type 2 - 'it wasn't a matter of if, but when.' now I work to control it, but, the one thing I loathe is self righteous individuals daring to presume THEY know ANYTHING a out another persons private health concerns, you dont, so beware of being so high and mighty, because it might one day be to YOU a doctor says those fun words. 'you have diabetes'. It is an all consuming awful devil of a thing, but it isn't cancer, or MS or any number of things that are far worse, so I count my blessings and my toes and get on with it.
It's comments like Susie's that are irritating. Name calling doesn't help. Also it would be nice if all dieticians were on the same page. Each one gives different advice and if I followed some of their directions my BS would be sky high. We have to learn ourselves what works for us. I don't talk about my diabetes to anyone because it's none of their business and I don't need their advice. That goes for my daughter-in-law who we call the "food police" because she is in everyones face no matter what they eat.
My boyfriend of four years (we started dating in our 60's) has diabetes type 1. We will be spending the rest of our lives together,and I want it to be a long time. I haven't been hugely involved in his eating habits, which are very good so no need for concern, but his numbers are all over the place lately. He is working with his doctor and adjusting meds as needed but it seems to take so long to get consistent results. I want to help, but I have a tendency to get a little obsessive about projects that I am passionate about. And I don't want this to be a negative in our relationship. I don't know much about diabetes, so I am reading up on it. I am a bit hyper vigilant right now because I just lost a very dear friend from grade school to diabetes complications. He was my age. Yikes. My question: What is the best way that I can become involved and supportive without affecting our relationship in a negative way?
Lisa: regarding your friend who has a child with diabetes: If she is a good friend of yours she would probably appreciate your asking a general question about how her child with diabetes is doing.
Jesus: You need not fear insulin. When you body doesn't make insulin or make enough insulin than a person with diabetes may need to start on insulin. Many people with diabetes use insulin to control their blood sugars. We advise that you request to see a diabetes educator and have a heart to heart talk.
Hi I need advise about taking insulin my doctor insist in me taking it but I've been told that insulin is bad for the health so please help anyone thanks
Well written post. I must say that you have shared a very informative as well as detailed guide on misconceptions regarding Diabetes. Would love to share this information with my relatives as well. Thanks for the post.
I just learned from a friend that her 5 year old child has Type 2 diabetes. They are a private family so I want to be respectful. She apologized for crying and we spoke briefly about how all of "us parents" stick together and support each other. She seemed to be comforted by the conversation, however I don't know to proceed. Do I wait for her to bring it up again, should I generically ask how everyone's doing?? This is a first for me, I don't want to offend or overstep, but I want her and her family to know I care...advice please.
Hi - Great Site. I have never been told what I could/should do to quickly lower my blood sugar when it is too high. Of course I know that if it is very, very high, to go to
the emergency room. But what can they do to quickly lower it. I know they monitor you for heart attack, stroke. etc.. What can I do to not have to go to the ER.
My pet peeve is medical professionals, such as doctors and nurses, especially in hospital settings, who either know next to nothing about diabetes or who only know information that is dangerously outdated. It's especially galling to have hospital staff throw up their hands when they find out that you have a pump and try to take it away. I had that happen when I had a stroke...they switched me to shots and within 18 hours my bg, which had been 120 when I went in, went up to 285. And years ago a nurse insisted I take insulin before lunch because my blood sugar was 126 and "you HAVE to treat it!"...NO, I didn't have to treat it, as my NPH insulin would have kicked in right after lunch and if I'd taken more insulin before lunch I would have gone into insulin shock.
I wish all hospital staff were required to take in-service courses on diabetes at least once or twice a year.
So much of the Oz advertising and publicity makes those of us who have Type 2 feel guilty about it as though it was our fault that we got it as most of us did not have any control over our genes and may have sacrificed our personal well being to hold down stressful jobs and/or spend hours and hours sitting at desks, gaining weight and getting little exercise.
5 uncles died as a result of Diabetes and I am pre- Diabetic. Senior center in Pennsylvania serve food that promotes diabetes. I now eat at home watching my diet and exercise. No place to check my blood glucose like I did in California at the Senior center once a week for free.
Thanks for this!!!! I've been having a really tough time lately and this had me laughing through my tears! ;) I loved the "shooting up" jokes and "horror stories"..... Soooo true! hahaha Thanks again!
My pet peeve is when people assume all diabetics are obese or lazy and 'deserve' the disease (or that it is their fault). My significant other recently was diagnosed with Type II diabetes at a time when his weight was in the normal range. He was a college athlete who led a relatively sedentary life in his 20's. He was diagnosed at age 32. Many books and advice on diabetes involves telling people to exercise and stay at a healthy weight to avoid becoming diabetic. But that's not the whole story. Most overweight people never become diabetic... and there are diabetics who are not overweight. I dislike the judgmental tone of so many people (including doctors and health care personnel) when it comes to discussing this disease.
My pet peeve is diabetics who blame everything wrong in their lives on their diabetes. I usually don't even mention that I am diabetic, I just let them prattle on in their self pity. What a miserable life.
My doctor said that if I didn't cut my suger down in five years I would be a Diabetic; heres the problem 1 every thing just about has sugar in it of one kind or another 2 my doc. did not give me even a sugestion on what foods I should eat etc and 3 I have cancer on my moms side of the family and in mom, and I also had colon cancer and breast and lemph node cancer.
Now how am I to do anything about the suger problem when I cannot add sweetener to my recipes with out causing cancer in my body???
Healthcare reform should not only address the obesity epidemic (both in adults and children), but should also take into consideration the rising epidemic of dental disease. Diabetes attributed to obesity is also impacting dental health, gum disease in particular. We lack access to affordable dentists in this country. There has been widespread increase of dental caries in children. As focused as we are on cosmetic dentistry and teeth whitening, in the United States, the aforementioned dental issues need at least equal attention. We need to contact our local congressmen so that dental care is included in the Obama healthcare reform plan.
Pet peeve People with T2 telling me a T1 what their blood sugars are.
Mine are all over T2‘s seem to have perfect blood sugars, to me.
I do not what to here it.T1 and T2 are completely two different diseases.
T1 for 35 years A1c 6.8.
my husband has type 2 diabetes for a couple of years he has nerver complained befor about his toe befor,its the toe next to the big toe,he has a red circle around it and its sore.he has complained a week or more of joint pain in his toes. does anyone ever get this system ? with diabetes? or is this normal? any replies will be appreciated thanks dian
Good grief, Rose. How long have you been carrying that negativity around? Relax. There are people in this world with certain opinions, you can try and reason with them but if they have their own problems - let it go. This world will never be ideal. You can only control your own reaction to the situation (who hasn't heard that?!). There are people who contribute to their own health problems and that is what Rich was trying to say. It's just like AIDS - not everyone has brought it upon themselves - like innocent children or raped women or men. Just as it is with diabetes, some bring it upon themselves by not living a healthy lifestyle and some just get it no matter what they do. Our society has become ultrasensitive to any perceived nuance of discrimination or criticism.
My last comment, I did not mean that those that get diabetes particularly Type 2 are unhealthy. It is just finding ways to stay we are not as healthy as we would like to be so we are trying to change. Like the smoker or someone with a drinking problem that wants to change.
I have been a diabetic since 15 years old and now 43 years with diabetes. My control is great. Have not had the major problems associated with the disease. Following a lifestyle that watches my diet, nutrition, exercise, insulin and blood sugar has kept me in control. Up to 1998, I did fixed doses of NPH and Regular which worked but hated it setting my body clock around meals. Have done carb counting adjusting regular insulin. One problem that I have found is reacting to a high > 300 with a correction bolus. Look at the meter reading as one point in time that contantly changes. Wait for the next reading and act when necessary. The fear of that one high signals fear of headed down the road to kidney, nerve, eye and other problems. NO! NO! Remember Wait for at least 2 readings before a meal before acting on a high. Would love an in person support group to talk about methods of controlling diabetes. Does anyone thing Diabetes should be named something else that doesn't sound like death? Some name that describes it as a metabolic disease of the endocrine glands that is controlled with a healthy lifestyle with or without insulin.
My pet peeve is self-righteous Type I people who think that ALL people with Type II DESERVE it. No one deserves this disease. I was diagnosed at 32...while I have been overweight and mostly sedentary, those weren't the only factors - most of my paternal relatives have Type II as well. I am now eating well, exercising daily, and have my A1C down to 5.8 - but I will be dealing with this for the rest of my life just like the people with Type I.
My pet peeve has to do with Type I and Type II. My great-grandparents were first cousins, and all their kids developed diabetes at some point, three of them as teens. Those three were dead by age thirty. Type I is often genetic--these people were farmers who worked hard all their lives. Today, we have a lot of people who have or will have Type II. This is not inherited, it is because they eat more than they should and live inactive lives. A reality of our sedentery society. The people who suffer from diabetes because of any reason other than eating 6000 calories a day are a separate concern. I worked with a women who died from heart and diabetes complications at 46. She was obese all the 23 years I knew her. She signed her own death warrant. She was immensely stubborn and physically lazy. Another girl I worked with was diabetic since childhood, she struggled every day with her blood sugar, trying to live a normal life. This included giving birth to a little boy successfully, then caring for him and holding down a full time job. We all supported her efforts however we could at work. But as for the big mouthed fat ass, well, that's different. It's tragic so many Americans CHOOSE diabetes, especially if we will be forced to pay for their treatment with federal health insurance.
Those pet peeves are so on point. I hate when people ask if I have the bad diabetes. In fact, I've actually used that direct quote of "Is there a good kind?" when I answer people.
How about... "Oh I could never be diabetic, I'm so scared of needles." Really? Really? Like diabetics signed up for it because they LOVE needles. I was terrified of needles and got diabetes...I deal. I feel those types of comments are extremely inconsiderate and down right rude at times. Like thanks! For the reminder that I live my fear everyday.
Pet Peeve - Genetics that don't surface until it's almost too late!
I have the maternal marker for Type II Diabetes. Diag. @ 50, April 2004. I used to have a supposed expert in Diab. but when I constantly asked him "shdn't I be seen by an Endocrinologist?" he just shrugged it off! Well, long story short, Sept. 10, 2008 last year after 6, SIX unplanned surgeries since Feb. 07, all the stress apparently had caused my Hb to go up AND due to a Blood clot, PE in my lower right lung that same day in Sept., during the hosp. stay, the stress caused my b. sugar to sky rocket up to 300's-500's, which it NEVER does @ home, they forced insulin shots on me, which is actually assault, (yes!) well come to find out, my THYROID was beginning to stop working! HYPOTHYROIDISM CAN make a person INSULIN RESISTANT! HEAR YE HEAR YE! HYPOTHYROIDISM CAN MAKE A PERSON INSULIN RESISTANT! So, after 6 more months of living hell & having to find a new GP who gives a darn about me, AND after having to SELF-REFER to a new Endocrinologist who said my thyroid was subclinical & we needed to do a thyroid panel, well it turns out that now, also due to my paternal side grandmother who also had this problem, I'm now on Levothyroxine along with the Glimiperide to go along with the Metformin to make my body produce the needed Insulin on its own! I also discovered that due to an online Dr. just graduated who told me to get a certain test, I also have the Hypercoaguability disorder for blood clo
What the doctors failed to tell me was that diabetes is just a part of a multi endocrine system problem for a lot of people. For me diabetes, polycsyctic ovary diseases, goiters, bone spurs, adhesive capsulitis, trigger finger, repeated root canals, they were all part of general endocrine system problems that were ignored because of the diagnosis of diabetes. It took years before I found the related literature that linked all of my complaints together. A dentist dealt with my tooth issues; a gynecologist, my ovaries. A thyroid specialist choked me periodically and an endocrinologist monitored the progress of my diabetes. I was sent to a podiatrist for my broken foot bones and an orthopedist for my weird lumps in my hands. I got physical therapy for my frozen shoulders and electrolysis for my unwanted hair.
Finally, a nutritionist tested my hair and found that I had a mineral imbalance and suggested taking 4,000 units of Vitamin D, calcium, magnesium and a small dose of chromium. My skin improved, I haven't had a broken tooth in a few years and most of the mobility has returned to my shoulders. After all this time, doctors don't understand diet. And if each of your body parts are treated individually you will never see the whole picture.
Never stop asking questions,
never stop looking for the answers.
I dislike diabetes,have had it for 30 years ans thngs were fine.Now it is really getting me, neuropathy has made it very hard to walk,right now all of a sudden my blood sugars are high even if I don't eat they get worse.Been working for three weeks to control them, my a1c has been 6.5 to 6.8 for years and now it 8.7. Been very strick in control and changed my insulin but nothing helps.
The most discouraging words I have heard were from a doctor of endocrinology. He told me that being diabetic was a downward sprial the rest of my life and he bet I would be on insulin within a few months. My regular endocrinologist, a very understanding woman, is excellent. My A1C is 6, I have no problems with kidneys, eyes or neuropathy and she is very encouraging. I am on oral medication. My BS was 93 this morning.
I love my diabetic!!! It really confuses both of us, that when I make a meal that should be wonderful for his blood sugars and they are sky the next morning. Then the next night I make something with potatoes and his sugars are wonderful the next day. Diabetes is really a weird disease.
hi i am having symtoms of hypos with bsls of 4.4 to 4.7.i am diet controlled and seem to hav to eat a lot to stop symtoms has anyone heard of hypos at these readings
I dislike the food police. I am the one in charge of my diet and I follow my doctor's recommendations. If I decide to eat something, that's no one's problem but mine.
I have had Insulin Dependant Diabetes for the last 34 years, and the last three years , I have had Parkinson's Disease. Is there any one elce out there in the same position as I ? Is there any one who can tell me how quickly the disease will progress with me? What can i do to prevent it coming on so quickly ? What should I eat in order to help me with the two diseases?
Some time ago I was in the hospital as my blood sugars were getting too high, they eventually found out that I was forgetting to bolus for what i had been eating ! ! ! Pretty drastic especially since before i got the P.D. My hbA1C was in between 5.6 or 6.5 it is now nearer to 7 or 8 which I don't like.
As far as going to a docter with more than one compaint, I find, that they don't mind what you die of, as long as you don't die of their complaint.
My pet peeve is going to a doctor for a problem that is NOT related to my diabetes of 46 years and hearing "Well after all, you are diabetic. Skin blemishes, ingrown toenails, hair falling out, or stomach disorders, etc. are ALL related to your management of diabetes." While I realize that diabetes is very serious, I could not have lived this long with the disease (type 1) without having done what I was supposed to do. It would be nice to have medical professionals hear me when I tell them something is wrong and search for the real cause of the problem, not just blame it on diabetes and blow it off. I have had a heart attack (stress after the death of my husband), stomach ulcers twice after being given medications which caused them, and I have no problems with neuropathy, kidney failure, or any of the known diabetic complications. I would like to be treated like any other patient with normal problems, not "just another diabetic who does not follow the rules".
Pet Peeve: That all Type II diabetes patients are obese. I am not obese. All my life until, yes until, I became a diabetic (11 years ago at age 54), I weighed less than 125 pounds except when pregnant. My diet had always been healthy, no junk food, etc. Now I have this awful stomach which began when I started to take medication for diabetes. What a bummer! My legs and arms were always small; today they are smaller. My siblings (3 of them) have diabetes and they were also very small people who have gained excessive weight since they became diabetics. Big time TV Journalists are so prejudiced in their reporting on this "dreadful" disease. Most in their reporting insinuate that all diabetics are ignorant and uneducated about its causes. Another thing that has happened to me is that I now have blemishes and my skin was absolutely flawless, glowed and did not look my age and alll of this began about two years ago. I now have an insulin pump and for the most part have an A1C of 6.5 or lower. Thanks
Pet peeve - People who think because my husband is insulin dependent that our diet is limited. You just have to be more creative with the menus. Since we live in the country and have a garden we have a lot of ways we can go. Learning to adapt the old family recipes has made it much easier. Visitors, when they sit at our table will see no difference, even in the desserts, but it's there, and it all good for us.
What I love...everyone believing that only people who are "fat and lazy" get diabetes...regardless of family history of three generations dealing with it. A friend said to me, "My daughter needs to get her weight under control or she'll end up a diabetic like you." Sigh.
My pet peeve is people who eat whatever they want and manage their diabetes with insulin. I have two friends who say, "I shouldn't eat this but...I'll just take more insulin." I work for a home health agency and know how destructive their thought pattern is.
My pet peve is reading an obituary in the newspaper that says,"Joe died after a long struggle with diabetes."
Nobody dies of diabetes but from the complications caused by diabetes. The major one being cardiovascular disease.
Life with diabetes doesn't have to be a struggle if you learn how the self manage and do the things that are necessary. Take your medication, test your blood sugar, eat healthy and practice portion control, see your medical care team for frequent checkups. Follow the simple rule, Do more of what works and less of what doesn't. (Livabetes Glucose Goddess) www.livabetes.com
Florian (Type 1, 42 years and going for the Joslin 50 Year Medal)
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