Having a baby with craniosynostosis can cause anxiety and be emotionally draining. Talking to people who are dealing with similar challenges can provide you with information and emotional support.
Ask your doctor about support groups in your community. If a group isn't for you, perhaps your doctor can put you in touch with a family who has dealt with craniosynostosis. Or you may be able to find group or individual support online.
Sept. 30, 2013
- Burokas L. Craniosynostosis: Caring for infants and their families. Critical Care Nurse. 2013;33:39.
- Craniosynostosis information page. National Institute of Neurological Disorders and Stroke. http://www.ninds.nih.gov/disorders/craniosynostosis/craniosynostosis.htm. Accessed Aug. 1, 2013.
- Buchanan EP, et al. Overview of craniosynostosis. http://www.uptodate.com/home. Accessed Aug. 1, 2013.
- Craniosynostosis and craniofacial disorders. American Association of Neurological Surgeons. http://www.aans.org/Patient%20Information/Conditions%20and%20Treatments/Craniosynostosis%20and%20Craniofacial%20Disorders.aspx. Accessed Aug. 1, 2013.
- Cook AJ. Decision Support System. Mayo Clinic, Rochester, Minn. June 21, 2013.