Because congenital heart disease can be mild or severe, treatment options vary. Your doctor may suggest a treatment to attempt to correct the heart defect itself or treat complications caused by the defect. Treatments your doctor may recommend include:
- Regular checkups. Relatively minor heart defects may require only periodic checkups with your doctor to make sure your condition doesn't worsen. Ask your doctor how often you need to be seen.
- Medications. Some mild congenital heart defects can be treated with medications that help the heart work more efficiently. You may also need to take medications to prevent blood clots from forming or to help control an irregular heartbeat.
- Implantable heart devices. Devices that help control your heart rate (pacemaker) or that correct life-threatening irregular heartbeats (implantable cardioverter-defibrillator, or ICD) can help some of the complications associated with congenital heart defects.
Special procedures using catheters. Some congenital heart defects can be repaired using catheterization techniques, which allow the repair to be done without surgically opening the chest and heart.
In procedures that can be done using catheterization, the doctor inserts a thin tube (catheter) into a leg vein and guides it to the heart with the help of X-ray images. Once the catheter is positioned at the site of the defect, tiny tools are threaded through the catheter to the heart to repair the defect.
- Open-heart surgery. If catheter procedures aren't enough to fix your heart defect, your doctor may recommend open-heart surgery.
- Heart transplant. If a serious heart defect can't be repaired, a heart transplant may be an option.
Follow-up care is important
One of the biggest myths many adults with congenital heart disease have is they no longer have to worry about congenital heart disease. Many think they've either outgrown their condition or that treatment they had as a child cured them. But this is rarely true.
If you have congenital heart disease, even if you've had surgery as a child, you're not necessarily cured. This doesn't mean you face a lifetime of problems. However, it does mean you're at increased risk of developing complications, such as infections of the heart (endocarditis) or dangerous abnormal heart rhythms. Some problems might require surgical treatment as you get older.
If you had your congenital heart defect or congenital heart disease treated as a child, it's important to have lifelong follow-up care, especially if you had corrective heart surgery.
This follow-up care could be as simple as having periodic checkups with your doctor, or it may involve regular screenings for complications. The important thing is to discuss your care plan and make sure you follow all recommendations.
Ideally, your care will be done by cardiologists trained in following adults with congenital heart defects. This may be a challenge for some because there's currently a shortage of cardiologists with such expertise, as well as a limited number of centers that specialize in following adults with congenital heart disease.
Congenital heart disease and pregnancy
Women with congenital heart disease who wish to become pregnant should talk with their doctors before becoming pregnant. They should discuss possible risks, as well as any special care they might need during pregnancy.
A successful pregnancy is possible if you had a congenital heart disease, especially if your defect was mild. However, some women with complex congenital heart defects may be advised against pregnancy.
It's important for both men and women to know that if they have congenital heart disease, there may be an increased risk of passing on some form of congenital heart disease to their children. Your doctor may suggest genetic counseling to help you predict the risk of passing on inherited forms of congenital heart disease.
April 01, 2016
- Bonow RO, et al. Braunwald's Heart Disease: A Textbook of Cardiovascular Medicine. 9th ed. Philadelphia, Pa.: Saunders Elsevier; 2012. http://www.clinicalkey.com. Accessed Dec. 20, 2013.
- Kempny A, et al. Meeting the challenge: The evolving global landscape of adult congenital heart disease. International Journal of Cardiology. 2013;168:5182.
- Zomer AC, et al. Adult congenital heart disease: New challenges. International Journal of Cardiology. 2013;168:105.
- What are congenital heart defects? National Heart, Lung, and Blood Institute. http://www.nhlbi.nih.gov/health/health-topics/topics/chd/. Accessed Dec. 20, 2013.
- Before pregnancy. American Diabetes Association. http://www.diabetes.org/living-with-diabetes/women/pregnant-women/before-pregnancy.html. Accessed Dec. 20, 2013.
- Overview of congenital cardiovascular anomalies. The Merck Manuals: The Merck Manual for Health Care Professionals. http://www.merckmanuals.com/professional/pediatrics/congenital_cardiovascular_anomalies/overview_of_congenital_cardiovascular_anomalies.html. Accessed Dec. 22, 2013.
- Lifestyle changes for heart failure. American Heart Association. http://www.heart.org/HEARTORG/Conditions/HeartFailure/PreventionTreatmentofHeartFailure/Lifestyle-Changes-for-Heart-Failure_UCM_306341_Article.jsp. Accessed Dec. 26, 2013.
- Goldman L, et al. Goldman's Cecil Medicine. 24th ed. Philadelphia, Pa.: Saunders Elsevier; 2012. http://www.clinicalkey.com. Accessed Dec. 20, 2013.
- Riggin EA. Decision Support System. Mayo Clinic, Rochester, Minn. Jan. 9, 2014.