Coping and support

By Mayo Clinic Staff

Churg-Strauss syndrome is a serious disease. Even when it's in remission, you may worry about the possibility of recurrence or about long-term damage to your heart, lungs and nerves. Here are some suggestions for coping with the disease:

  • Educate yourself about Churg-Strauss syndrome. The more you know, the better prepared you may be to deal with complications or recurrences. Besides talking to your doctor, you may want to talk to a counselor or medical social worker. Or you may find it helpful to talk to other people with Churg-Strauss syndrome.
  • Maintain a support system. Although family and friends can help tremendously, you sometimes may find the understanding and advice of other people with Churg-Strauss syndrome especially helpful. Your doctor or a medical social worker may be able to put you in touch with a support group. Or you can look for a local or online support group through the Churg-Strauss Syndrome Association.
April 22, 2016