Churg-Strauss syndrome is a serious disease. Even when it's in remission, you may worry about the possibility of recurrence or about long-term damage to your heart, lungs and nerves. Here are some suggestions for coping with the disease:
July 12, 2013
- Educate yourself about Churg-Strauss syndrome. The more you know, the better prepared you may be to deal with complications or recurrences. Besides talking to your doctor, you may want to talk to a counselor or medical social worker. Or you may find it helpful to talk to other people with Churg-Strauss syndrome.
- Maintain a support system. Although family and friends can help tremendously, you sometimes may find the understanding and advice of other people with Churg-Strauss syndrome especially helpful. Your doctor or a medical social worker may be able to put you in touch with a support group. Or you can look for a local or online support group through the Churg-Strauss Syndrome Association.
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- Medication and side effects. The Churg-Strauss Syndrome Association. http://www.cssassociation.org/medications-and-side-effects.html. Accessed May 25, 2013.
- King TE Jr. Treatment and prognosis of Churg-Strauss syndrome of eosinophilic granulomatosis with polyangiitis (Churg-Strauss). http://www.uptodate.com/home. Accessed May 21, 2013.
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