You're likely to start by seeing your family doctor or a general practitioner. However, in some cases when you call to set up an appointment, you may be referred to a doctor trained in brain and nervous system conditions (neurologist).
Because appointments can be brief, and because there's often a lot to talk about, it's a good idea to be well-prepared for your appointment. Here's some information to help you get ready for your appointment, and what to expect from your doctor.
What you can do
- Be aware of any pre-appointment restrictions. At the time you make the appointment, be sure to ask if there's anything you need to do in advance.
- Write down any symptoms you're experiencing, including any that may seem unrelated to the reason for which you scheduled the appointment. For example, even though your primary complaint may be headaches, your doctor will want to know about any changes you may have noticed in your vision, speech or coordination.
- Write down key personal information, including any major stresses and recent life changes.
- Make a list of your key medical information, including other conditions you're being treated for and the names of the medications that you're taking.
- Take a family member or friend along, if possible. Sometimes it can be difficult to soak up all the information provided to you during an appointment. Someone who accompanies you may remember something that you missed or forgot.
- Write down questions to ask your doctor.
Prepare a list of questions so that you can make the most of your limited time with your doctor. List your questions from most important to least important in case time runs out. For Chiari malformation, some basic questions to ask your doctor include:
- What is likely causing my symptoms or condition?
- Other than the most likely cause, what are possible causes for my symptoms or condition?
- What kinds of tests do I need?
- Do I need treatment?
- If you don't think I need to be treated now, how will you monitor me for changes in my condition?
- If you recommend surgery, what should I expect from my recovery?
- What is the risk of complications from surgery?
- What is my long-term prognosis following surgery?
- I have these other health conditions. How can I best manage them together?
- Are there any restrictions that I need to follow?
- Should I see a specialist? What will that cost, and will my insurance cover seeing a specialist?
- Are there any brochures or other printed material that I can take home with me? What websites do you recommend visiting?
In addition to the questions that you've prepared to ask your doctor, don't hesitate to ask questions during your appointment at any time that you don't understand something.
What to expect from your doctor
Your doctor is likely to ask you a number of questions. Being ready to answer them may reserve time to go over any points you want to spend more time on. Your doctor may ask:
- When did you first begin experiencing symptoms?
- Have your symptoms been continuous or occasional?
- If you experience head and neck pain, is it made worse by sneezing, coughing or straining?
- How severe is your head and neck pain?
- Have you noticed any change in your coordination, including problems with balance or with hand coordination?
- Do your hands and feet feel numb or do they tingle?
- Have you developed any difficulty swallowing?
- Do you experience episodes of dizziness or faintness? Have you ever passed out?
- Have you developed any problems with your eyes and ears, such as blurred vision or a ringing or buzzing in your ears?
- Have you had problems with bladder control?
- Has anyone ever noticed you stop breathing during sleep?
- Have you been taking pain relievers or using other approaches to relieve your discomfort? Does anything seem to work?
- Do you have any additional symptoms, such as hearing loss, fatigue, or changes in your bowel habits or appetite?
- Have you been diagnosed with any other health conditions?
- Has anyone in your family been diagnosed with Chiari malformation?
Sept. 29, 2016
- Chiari malformation fact sheet. National Institute of Neurological Disorders and Stroke. http://www.ninds.nih.gov/disorders/chiari/detail_chiari.htm. Accessed July 19, 2016.
- Tubbs RS, et al. The Chiari malformations and syringohydromyelia. In: Principles of Neurological Surgery. 3rd ed. Philadelphia, Pa.: Saunders Elsevier; 2012. http://www.clinicalkey.com. Accessed July 19, 2016.
- Khoury C. Chiari malformations. http://www.uptodate.com/home. Accessed July 19, 2016.
- Ropper AH, et al. Developmental diseases of the nervous system. In: Adams & Victor's Principles of Neurology. 10th ed. New York, N.Y.: The McGraw-Hill Companies; 2014. http://www.accessmedicine.com. Accessed July 19, 2016.
- Chiari malformation. American Association of Neurological Surgeons. http://www.aans.org/Patient%20Information/Conditions%20and%20Treatments/Chiari%20Malformation.aspx. Accessed July 19, 2016.
- Tubbs RS, et al. Chiari malformations. In: Youmans Neurological Surgery. 6th ed. Philadelphia, Pa.: Saunders Elsevier; 2011. http://www.clinicalkey.com. Accessed July 19, 2016.
- Heiss J, et al. Management of Chiari malformations and syringomyelia. In: Schmidek and Sweet's Operative Neurosurgical Techniques. 6th ed. Philadelphia, Pa.: Saunders Elsevier; 2012. http://www.clinicalkey.com. Accessed July 19, 2016.
- Riggin EA. Decision Support System. Mayo Clinic, Rochester, Minn. May 10, 2016.