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Every week, new experimental drugs are in the news for cancer treatment. The process of studying and approving a new cancer drug from start to finish can take many years. In certain situations, the Food and Drug Administration (FDA) gives permission to companies to provide new experimental drugs to people outside of the clinical trial process. This is usually called compassionate use of a drug.
In order for you to receive the experimental drug with the compassionate use program, your doctor must contact the drug company as well as submit an application to the FDA. There are strict criteria that must be present in order for you to be approved.
Keep in mind that even if you're approved to receive the experimental drug, you may experience unknown side effects and you may not benefit from treatment.
Also, not all drug companies agree to give access to experimental drugs through this process. Be informed about the costs — the drug company may charge you for the experimental drug and your insurance company may deny coverage of experimental drugs.
Another way to gain access to experimental treatments is to look for expanded access studies. To find studies, search for the term — expanded access studies — on ClinicalTrials.gov. For more information on the FDA process for compassionate use of drugs, visit the FDA website (www.fda.gov/Drugs/default.htm).
Follow me on Twitter at @SherylNess1. Join the discussion at #livingwithcancer.
Sheryl M. Ness, R.N.
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Are there organizations that help a single parent to fund an experimental brain cancer treatment, for the parent?
Any info, firstname.lastname@example.org
am 81 – my husband and i have been pattines in rochester – i recently had a mild stroke and have other age related problems but getting to rochester is harder now that i’m older and alone – my husband passed in 06 – so it will be wonderful to have you and your teams right here for consultation and then if there was a need a followup in rochester but just to start out here would be great.i also have a 51 year old daughter who has a major depression mental illness and as a result had become very obese from effects of medication – because her parents have been helped so much at mayo she expressed a wish to see them too but to travel to rochester and the expenses involved would not be feasible so it would be great to get started right up here.we need you here – thank you for realizing that.
You are very fortunate, Vicki, that the natural supplements have worked for you. But one does not generally die of roseacea (which I too have) or osteoarthritis (which I too have). And diabetes and heart disease can be controlled. I am 80 and have had metastatic breast cancer for 3 years. Without the drug treatments I have had, I would now be dead. I am careful about what I eat and exercise regularly. But natural treatments do not work for cancer. And natural treatments do not "cure" metastatic cancer. That is a wishful myth. There is no cure. Wish they did.
Totally agree with Vicki
Many experimental drugs are part of double blind trials. Instead of randomly assigning people, is there a way to allow people to choose which arm they want to be in?
If anyone really cared about curing cancer, and they don't because it is a multibillion dollar industry, they would also experiment with natural substances. Many people have been cured here in the USA and overseas, but no one cares, as Big Pharma rules the USA, and the FDA believes everything they say. It's so sad. Just look at all the lawsuits for killer drugs that have been released on to the public. It's big money for everyone involved in the medical field and the drug companies. The only losers are the patients.
This is from someone who despises drug companies except for extremely rare occasions such as infections or major surgery. I have taken care of my own osteoarthritis, roseacea, diabetes, and heart problems and have survived so far to 75 years of age. The all natural supplements I started using about 25 years ago, and I research them constantly.
If cancer were ever cured all the cancer clinics would have to be shut down and millions of people put out of work. So what is your incentive? I realize specific cures have to be addressed to specific cancers, but there are just as many natural substances out there that you don't have to get in bed with the drug companies, who test things for a year or two then the public spends the next half-dozen years finishing the testing and they don't get paid for doing the rest of the research. Instead, they fork out millions for stuff that is slowly killing them physically and financially. I intend to die naturally.
Drugs take years to be accepted. Drugs have side effects. The research group from Johns Hopkins tell us the the present methods kill more than they heal yet have been in use for years already. When are we going to get real and properly look into treatments that do not lessen the bodies ability to fight for itself? The true cure for Cancer is to strengthen body, mind, and spirit to allow the client to heal themselves, and who knows the person better than they do themselves?
I would be interested in the comments of others in this.
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