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The Living with Cancer blog is celebrating its four year anniversary! Thanks to all of you and other contributors who have made these four years so successful.
We've published more than 100 blog topics that are still being discussed. You've added more than 3,000 comments — with a majority of them directed from one person to another in an effort to help and support each other. This is so inspiring.
The blog is a way to connect with you outside of the physical walls of Mayo Clinic. My goal is to write about topics that are of interest to you and that reflect real-life aspects of living with cancer.
I want to make you feel welcome and comfortable sharing your experiences with each other. I also want you to feel that you receive something valuable from the blog.
We frequently discuss nutrition, side-effect management, new treatments, research, emotional aspects and mind-body techniques.
Some of the most popular topics have been related to the everyday aspects that may not be easy to talk about in person. They've included:
The goal is to empower you with high quality information and offer a safe place to discuss difficult topics, share your experiences and support each other.
I'd love to know how we're doing after four years. As you think about how you've participated or not, please comment with your feedback on these three questions:
Thank you for making the Living with Cancer blog a great place for people to find hope, resources and support. Please post comments with your thoughts.
Sheryl M. Ness, R.N.
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Selecting "Submit" signifies that you have read and agree to our posting guidelines.
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I am very appreciative of this Blog. It helps not only with helpful information that many people living with any cancer can relate to but offers thoughts to ponder. Your input is important especially if inaccurate medical information is given here. I think a good topic for the future might be the question"What is it like having cancer". It is not often that we hear it expressed in words.
I have read two comments referring to women who have told their stories which included the cruel and rude treatment towards them by their husbands of many years. Dealing with the cancer is far more than enough with also the radiation ad Chemo. to even listen to husbands who are so miserably selfish and cruel makes us all sick. First of all...you are more than beautiful and you need to see and realize it. He married you and so that alone proves you are or he wouldn't have. So what if you have lost hair or anything else. Is he so good looking tha the can sit there and judge you? NO he is not and no doubt he knows it too. He would treat you the same if you had no cancer at all because that is the way he is. There are reasons women remain with their husbands so there must be a reason you do but take it to another level. Block him out ! Let him live without you even in the same household. Don't even care what he has to say and sont react to his rude words. See yourself for who your are and that is not ugly or anything negative. Get out as much as you can and try to do the things you enjoy without him. Do not include him in your life. Even if you love him. If he cannot encourage and hug you and provide the warmth you deserve of him, then rid yourself of him the best you can. Donot cook for him, wash his clothes or anything else for HIM. You take careof you and you do for you what he cannot.
Hi !! I was diagnosed with lung cancer two years ago and was assured I had been surgically cured. I went to the doctor complaining of pain in my right side several times to be told by two doctors it was nerve damage due to the lung surgery. Recently was diagnosed with stage 4 cancer located in both lungs, adrenal glands, and other areas. I have gone through the radiation of my adrenal gland and now am in Chemo which makes me so sick for three weeks I feel I am dying in a very severe manner. They wont tell me if it will even help me or if I am only hoping for a miracle. They wont answer questions or advise me on which area I should receive radiation in. I am sooo weak that I cannot even do basic laundry or the dishes. I will always try and fight to live with as little hope as is but I too wonder if these treatments are more for the business of money gain than for me. I am afraid to die and still I know I will even at that last moment Hope to find my spirit in the hands of God . Is there a wonderful place for us to go when our time comes ended here?
Cancer is a dreaded day. I do not know anyone who has experienced it that does not think so. Talk about denial or you are very lucky Godpal No two people are the same. LmDLkeeping your feelings to yourself is just the opposite from I have found. Telling people brings some uneducated comments and questions but it mostly gives you support and caring people.
Cancer is 100 % curable from my direct experience
whether it is breast / Prostrate .Try to locate problems at the earliest and after proper diognasis,one should take effective treatment from a leading hospital.No worry at all.lead normal and active life.Keep the information within you as otherwise others will panick you as if it is dreaded discese
I like how you give information on different topics and you also put other days and dates of past article so, if we want to read them we can go back to read them. I really don't know what you can do better. I think it is fine. There is one topic that I would like to see if on triple negative breast cancer. I had that 5 years ago and had a double mastectomy and went through chemo and radiation. As of right now I'm still in remission. I really enjoy your website and I think it has a lot of good information. Thank you so much.
Thanks Sheryl..I interpret the comments mucht the same as you. Folks do indeed want you to be involved. It is helpful for you to bring the conversation back to the original topic when we tend to wander off. however, THAT IS UNDERSTANDABLE IN A WAY AS MANY OF US HAVE SO MANY QUESTIONS AND ARE JUST PLAIN FRIGHTENED HAVING THIS DISEASE AND SOMEONE LIKE YURSELF CAN GIVE US INFO WHEN WE ARE ON THE WRONG TRACK. But WE MUST REMEMBER THAT NO QUESTION OR EXPRESSION OF FEELING IS WRONG IF IT IS BOTHERSOME.
Hi everyone, this is Sheryl, the Mayo Clinic nurse who writes the blog every week. I appreciate all of your feedback and suggestions. The purpose of the topic this week was to get your ideas (after 4 years of the blog) to make sure we are keeping topics up-to-date and also find out more about what you would like in the blog. My goal is to write about all aspects of living with cancer. Gina, this is your first time here, so take a look in the blog index for all of the discussions that are taking place. One of the goals of the blog is to provide a place for you to support each other. However, based on your feedback, it looks like you'd like me to get more involved. I will do my best to comment and provide support more often in the future. Erin, I promise to do better with this. Thank you Darlene and AW for connecting with each other. Darlene, I can tell that you are very strong and have a good sense of self worth, this is so important. Your husband may be afraid to face the reality that you are living. Do what is best for you today and keep your strong will to do what you need to for your future as well. I will be thinking of you.
Thanks for the post AW. I have been there for my husband all our 49 yrs. He told me once he cannot stand being around sick people. I was shocked. In the last 7 years he has become very distant. I worked my business which was next door to his, for 17 years and closed it last October. I have too much on my plate, his paperwork, mine, our home, I also do he landscaping and cutting trees and grass for 4 acres, not to mention cooking etc. He just wants to leave it in my hands or it doesn't get done. He will not go to a counselor as I have begged him to the other night. But when he told me this all, plus my having cancer makes him sick, I just sat shocked and held it inside. This has been on and off for 20 years. But after all these years where do you go. Money all tied up in house, and business and I am trying to sell my bldg. from the business. He has become cruel and I even told him I feel as I see his reactions, that he would be better off if I were dead. Told our daughter he would never marry again "it takes too long to train someone". I quit catering to him years ago, I am my own person and he made me this way. I love our children and am close to them. chemo puts me in bed for 10 days. New Meds from dr now. body fights it. Husband still working at his business, Im glad. No friends here in boonies. HE IS THE PROBLEM, and vehemently lets me know he will not support me. I can really say my marriage was over many years ago but I prayed and hoped he would change. th
Darlene You are not ugly. It is what your actions and heart are. On my first mastectomy it was me that was fearful of my husband of 58 years to see me. Finally, I just decided I am what I am. And he became comfortable with the situation. Have you considered it is not you but perhaps he. It sounds like he is having a problem accepting what is. Counseling by a professional may be of great help to you both. Have you looked on the web to see if there is a support group in your area? Also, if you talk to your oncologist for the crying and loneliness he/she may give you an anti depressant to help. If everything was ok with your marriage before this event it can be ok again and maybe even better. When I go to the cancer unit for treatment or appt. I send my husband on numerous errands. There is no need for him to sit there and see the different levels of what cancer can do to people. Let me tell you I have walked this journey for 15 years and each time they have put me into remission. I have had many good years. Try to get out and do volunteer work some place and maybe you could get some help with a caretaker for your son through social services. Make friends, get involved, and love yourself. There is a lot of help out there you just need to talk to a social worker at the hospital and find it.
This is my first visit to this blog/comments. I must say I am rather disappointed reading all the negativity. I was hoping for support somewhere. Diagnosed with endometrial cancer in July, hysterectomy w/26 lymph noded, clean. Cancer in uterine cavity and top of cervix. No support from husband of 49 years. Says he gets sick hearing of this, wont go to any appts with me and stays clear of me as if I am contagious. I cry a lot an am lonely. Have mid aged handicapped son Im taking care of also. How do you get thru to people. I am fighting for my life, SUPPORT ME, ENCOURAGE ME. Don't shut me out. Have 4th chemo treatment Nov. 6th. need 6 + radiation. Im disgusting to look at as my husbands point of view and wear a nice wig and keep myself up. I feel for everyone fighting this disease. Have tried to find support groups in our SW Michigan. NONE. We need help, need to talk and get support. Any comments. Thanks for reading this.
i am a five year survivor of lung cancer. i have two very close friends who have very bad cancers in different places. their check ups are not always good. i feel so bad when they ask about mine and so far they have all been good. how do i handle this? i dont know how to answer them.
Perhaps we need participants to help us out who have had success stories.
This is my first visit to this site. I found no hope or resources! Is the offering misnamed? Or did I misunderstand something? I am 66 and have multiple myeloma.
I enjoy reading the blogs as soon as the message enters my InBox.....helps me out to know that I am not the ONLY one going thru the nasty journey of cancer (twice for breast cancer, most recently stage IV ovarian). I agree with others on this blog, I wish that more would respond to the questions and concerns posted on this blog.....
What Support? I haven't found any so far. Started out with Hodgskin lymphoma. After the last chemo treatment they breast cancer. Had a masectomy.Three years later had another type of breast cancer and another masectomy. After that in 2005 my insurance dropped me and I have been on my own. I lived with a bad infection where they had started breast reconstruction and did not finish because I could not pay for it. That was pure torture. Plus I developed CLL / SLL cancer. It is in the third stage now and I still have no way to pay for chemo. I have lumps all over me and suffer terrible pain at times. I won't go to the hospital because of the financial burden. [ We were over $100,000 in debt with insurance ] Unless so Some millionaire has a desire to help I won't be here to see my grand children grow up. After all that, at the end of the day, I thank God for the life I have had and find peace in Him, I have found no other resource.
What really disappoints is that I feel just as alone after I post as I did before. Sometimes even more so.
I agree with a comment made earlier, that it would be nice to get some answers to some of our questions. I thought the blogs were for a sharing of information and some give and take. It seems that is more like a couple of doz. people making personal but disjointed comments and questions that remain un-answered.
I'm 81 and last August was diagnosed with CLL. In January an AML diagnosis was added to my life. I'm enrolled in a Pfizer experimental study that is working very well. I'm told there are about 10 of us in the U. S. on this study. If you are one of them, it would be pleasant to be in touch.
This is the name I will use today. I must confess I have used three names . All part of mine but do that so it is not recognized by anyone. Although I believe you Sheryll probably know from the email address. I would like to say first that I do not think we need another person, you are doing just fine and most of the topics I have gained knowledge that was helpful. congratulations on the four years and the responses are phenomenal along with your comments. Now, to address the three questions. 1. What do I like about the blog: It allows me to read other peoples experience and it makes me feel better when I identify with them. 2. 2 What can you do to do better. Perhaps a little more frequent and a few more responses from you if you are familiar with the topic someone brings up. I notice questions are frequently asked and no one responds. Better yet encourage your responders to share more from personal happenings. 3. What topics on blog. I would like to have more on specific medicines and experience folks have had or side effects or good effects. It is calming for me to hear or read them as I can identify and not be so frightened by them. Survival rate. I know all area different but there are some statistics out there. Actually, I think you do a pretty wide variety. Some do not apply to me but they do to others and that is great. Keep up the good work And the rest is up to us to keep going on the journey as difficult it may be. I long for energy.
I completed chemo in Dec. 2010 having had 16 treatments, then 35 radiation treatments in February, 2011. I have had neuropathy in the last 2 fingers in both my left hand, which is the worst, but also my right hand, and numb feet ever since. I take 6 Gabapentin tablets a day, and it helps some with the pain, but not entirely. Does anyone have a cure for this or at least something that would ease the pain in my hands, which is 24/7 and getting hard to live with. I've re-learned to type with the first 3 fingers on each hand! Thanks for any answers to my pain/neuropathy.
I'd like to see more than one person write the articles.
I would like to spread some holiday cheer to patients during their treatment appointments by providing them with goodie bags during the upcoming holidays. Can you suggest some small size items/products (perhaps travel size, etc) that would provide some cheer and comfort?
Hi, I have had breast cancer 24 years ago the right breast removed and Chemo and Tamoxifin then 2 years ago I had Anal cancer on the outside of my butt and they then found Lung Cancer and then CLL they at the Mayo removed the lower right lung and I still have lung cancer It was Stage 2 B but I am doing so fine no treatment on any of my cancers I am 69 and enjoying every minute of life will go to Arizoina in a month I do commercial embroidery so amd very busy and meet nice people evey day. I have the best doctors in the world at the Mayo in Rochester Mn and am tahnkfull for all they have done for me.
Be thankful when you are doing good with your illness!!!
I have Breast Cancer, had genetic testing done the results was a G. no one could tell me what the G stood for. It would be nice if testing for all people who results were a G.
so we could have some peace of mind.
HAVE BREAST CANCER, HAD GENETC TEST DONE RESULTS WERE A G. NO ONE COULD TELL ME WHAT THE G MEANS. IT WOULD BE NICE IF TESTING WAS DONE ON PEOPLE WHO TESTED WITH THE RESULTS WERE THE G. THANKS YVONNE
My husband had an esophagectomy after an early diagnosis of esophageal cancer about a year ago. Since then he suffers from this cough that racks his body trying to get phlegm up. Doctor said he is aspirating. Any help out there at all? The surgeon doesn't seem concerned, but he loses sleep and is worn out from all of the coughing. Help please.
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