Preparing for your appointment

You're likely to start by seeing your primary care doctor if you have signs and symptoms of Behcet's disease. He or she may refer you to a doctor who treats arthritis and other rheumatic illnesses (rheumatologist) to confirm a diagnosis of Behcet's disease.

If a rheumatologist wasn't involved in your diagnosis, you may be referred to a rheumatologist for the management of Behcet's. Depending on your signs and symptoms, you may also need to see an eye doctor (ophthalmologist) for eye problems, a gynecologist or a urologist for genital sores, a dermatologist for skin problems, a gastroenterologist for digestive difficulties, or a neurologist for symptoms that involve the brain or central nervous system.

Because appointments can be brief and there's often a lot of ground to cover, it's a good idea to be prepared. Here's some information to help you get ready for your appointment.

What you can do

  • List any symptoms you're experiencing, including any that seem unrelated to the reason for which you scheduled the appointment.
  • List key personal information, including major stresses and recent life changes.
  • List all medications, vitamins and supplements that you're taking, including doses.
  • Ask a family member or friend to come with you. In addition to offering support, he or she can write down information from your doctor or other clinic staff during the appointment.
  • List questions to ask your doctor. Preparing a list of questions can help you make the most of your time together.

For Behcet's, some basic questions to ask your doctor include:

  • What's the most likely cause of my symptoms?
  • What are other possible causes for my symptoms?
  • What tests do I need? Do they require any special preparation?
  • Is my condition temporary or long lasting?
  • What are my treatment options, and which do you recommend?
  • I have another medical condition. How can I best manage these conditions together?
  • Do you have any brochures or other printed material that I can take with me? What websites do you recommend?

What to expect from your doctor

Your doctor is likely to ask you a number of questions, such as:

  • What types of signs and symptoms have you been having and when did they start?
  • Do you have your symptoms all the time, or do they come and go?
  • How severe are your symptoms?
  • When did you begin experiencing symptoms?
  • What, if anything, seems to improve your symptoms?
  • What, if anything, seems to worsen your symptoms?
  • Does anyone in your family have a similar illness?
July 29, 2017
  1. Singer OV. Cogan and Behcet's syndromes. Rheumatic Diseases Clinics of North America. 2015;41:75.
  2. Smith EL, et al. Clinical manifestations and diagnosis of Behcet's syndrome. Accessed Dec. 20, 2015.
  3. Smith EL, et al. Pathogenesis of Behcet's syndrome. Accessed Dec. 20, 2015.
  4. Smith EL, et al. Treatment of Behcet's syndrome. Accessed Dec. 20, 2015.
  5. Alibaz-Oner F, et al. Behcet disease with vascular involvement: Effects of different therapeutic regimens on the incidence of new relapses. Medicine. 2014;94:1.
  6. Zierhut M, et al. Therapy for ocular Behcet's disease. Ocular Immunology and Inflammation. 2014;22:64.
  7. Caso F, et al. Biological treatments in Behcet's Disease: Beyond anti-TNF therapy.Mediators of Inflammation. 2014;Article 107421:1.