Preparing for your appointment

You're likely to start by seeing your primary care doctor if you have signs and symptoms of Behcet's disease. He or she may refer you to a doctor who treats arthritis and other rheumatic illnesses (rheumatologist) to confirm a diagnosis of Behcet's disease.

If a rheumatologist wasn't involved in your diagnosis, you may be referred to a rheumatologist for the management of Behcet's. Depending on your signs and symptoms, you may also need to see an eye doctor (ophthalmologist) for eye problems, a gynecologist or a urologist for genital sores, a dermatologist for skin problems, a gastroenterologist for digestive difficulties, or a neurologist for symptoms that involve the brain or central nervous system.

Because appointments can be brief and there's often a lot of ground to cover, it's a good idea to be prepared. Here's some information to help you get ready for your appointment.

What you can do

  • List any symptoms you're experiencing, including any that seem unrelated to the reason for which you scheduled the appointment.
  • List key personal information, including major stresses and recent life changes.
  • List all medications, vitamins and supplements that you're taking, including doses.
  • Ask a family member or friend to come with you. In addition to offering support, he or she can write down information from your doctor or other clinic staff during the appointment.
  • List questions to ask your doctor. Preparing a list of questions can help you make the most of your time together.

For Behcet's, some basic questions to ask your doctor include:

  • What's the most likely cause of my symptoms?
  • What are other possible causes for my symptoms?
  • What tests do I need? Do they require any special preparation?
  • Is my condition temporary or long lasting?
  • What are my treatment options, and which do you recommend?
  • I have another medical condition. How can I best manage these conditions together?
  • Do you have any brochures or other printed material that I can take with me? What websites do you recommend?

What to expect from your doctor

Your doctor is likely to ask you a number of questions, such as:

  • What types of signs and symptoms have you been having and when did they start?
  • Do you have your symptoms all the time, or do they come and go?
  • How severe are your symptoms?
  • When did you begin experiencing symptoms?
  • What, if anything, seems to improve your symptoms?
  • What, if anything, seems to worsen your symptoms?
  • Does anyone in your family have a similar illness?
Feb. 05, 2016
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  3. Smith EL, et al. Pathogenesis of Behcet's syndrome. Accessed Dec. 20, 2015.
  4. Smith EL, et al. Treatment of Behcet's syndrome. Accessed Dec. 20, 2015.
  5. Alibaz-Oner F, et al. Behcet disease with vascular involvement: Effects of different therapeutic regimens on the incidence of new relapses. Medicine. 2014;94:1.
  6. Zierhut M, et al. Therapy for ocular Behcet's disease. Ocular Immunology and Inflammation. 2014;22:64.
  7. Caso F, et al. Biological treatments in Behcet's Disease: Beyond anti-TNF therapy.Mediators of Inflammation. 2014;Article 107421:1.