Self-management

Coping and support

The challenges you face when living with ataxia or having a child with the condition might make you feel alone or lead to depression and anxiety. Talking to a counselor or therapist might help. Or you might find encouragement and understanding in a support group, either for ataxia or for your underlying condition, such as cancer or multiple sclerosis.

Although support groups aren't for everyone, they can be good sources of information. Group members often know about the latest treatments and tend to share their own experiences. If you're interested, your doctor might be able to recommend a group in your area.

March 14, 2017
References
  1. NINDS ataxias and cerebellar or spinocerebellar degeneration information page. National Institute of Neurological Disorders and Stroke. http://www.ninds.nih.gov/disorders/ataxia/ataxia.htm. Accessed Oct. 26, 2016.
  2. Todd PK. Overview of cerebellar ataxias in adults. http://www.uptodate.com/home. Accessed Oct. 26, 2016.
  3. Perlman SL. Evaluation and management of ataxic disorders: An overview for physicians. National Ataxia Foundation. http://www.ataxia.org/resources/publications.aspx. Accessed Oct. 26, 2016.
  4. Ataxia telangiectasia. National Cancer Institute. https://www.cancer.gov/about-cancer/causes-prevention/genetics/ataxia-fact-sheet. Accessed Oct. 26, 2016.