Finding out your child has Angelman syndrome can be overwhelming. You may not know what to expect, and you may worry about your ability to care for a child with medical concerns and developmental disabilities. There are resources that can help.
Work with a team
Find a team of doctors and therapists you trust to help you with the important decisions you'll need to make about your child's care and treatment. These professionals can also help identify and evaluate other appropriate resources in your area.
Consider a support group
Each family and each child with Angelman syndrome is different. But connecting with other families facing the same challenges may help you feel less alone. Ask your child's doctor for information about support groups and other organizations in your area that can help.
Jan. 17, 2012
- NINDS Angelman syndrome information page. National Institute of Neurological Disorders and Stroke. http://www.ninds.nih.gov/disorders/angelman/angelman.htm. Accessed Sept. 22, 2011.
- Angelman syndrome. Genetics Home Reference. http://ghr.nlm.nih.gov/condition=angelmansyndrome. Accessed Sept. 22, 2011.
- Dagli AI, et al. Angelman syndrome. In: Pagon RA, et al. GeneReviews. Seattle, Wash.: University of Washington; 2011. http://www.ncbi.nlm.nih.gov/books/NBK1144/?report=printable. Accessed Sept. 23, 2011.
- Diagnostic testing. Angelman Syndrome Foundation. http://www.angelman.org/healthcare-professionals/diagnostic-testing/. Accessed Sept. 22, 2011.