Finding out that your child has Angelman syndrome can be overwhelming. You may not know what to expect, and you may worry about your ability to care for a child with medical concerns and developmental disabilities. There are resources that can help.
Work with a team
Find a team of doctors and therapists you trust to help you with important decisions about your child's care and treatment. These professionals can also help identify and evaluate appropriate resources in your area.
Consider a support group
Connecting with other families facing similar challenges may help you feel less alone. Ask your child's doctor for information about support groups and other helpful organizations in your area.
Dec. 05, 2014
- NINDS Angelman syndrome information page. National Institute of Neurological Disorders and Stroke. http://www.ninds.nih.gov/disorders/angelman/angelman.htm. Accessed Oct. 6, 2014.
- Angelman syndrome. Genetics Home Reference. http://ghr.nlm.nih.gov/condition/angelman-syndrome. Accessed Oct. 6, 2014.
- Angelman syndrome diagnostic criteria. Angelman Syndrome Foundation. http://www.angelman.org/understanding-as/medical-info/diagnostic-criteria/. Accessed Oct. 6, 2014.
- Angelman syndrome diagnostic testing. Angelman Syndrome Foundation. http://www.angelman.org/understanding-as/medical-info/diagnostic-testing/. Accessed Oct. 6, 2014.
- Bailus BJ, et al. The prospect of molecular therapy for Angelman syndrome and other monogenic neurologic disorders. BMC Neuroscience. 2014;15:76.