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"Nothing About Us without Us."
These are words spoken all across our nation by people living with dementia, and nothing could be more important. I am committed to doing everything that I can to make sure that those living with dementia have their voices heard, and are included in all matters that pertain to them.
As someone who doesn't have dementia, I have only a limited perspective and understanding about the lived experience of dementia. Unfortunately, the all too common occurrence has been to exclude people living with dementia on most matters that pertain to them.
The good news is that with social media more and more people with dementia are finding opportunities to express themselves by writing and speaking about their experiences of living with dementia.
Not long ago the Dementia Action Alliance (DAA) shared some work that was inspired by the Pioneer Network's set of Values and Principles and customized specifically for the DAA by people living with dementia.
Those living with dementia who participated in this project encourage people to embrace these values and turn them into acts of kindness towards those living with dementia. I'm grateful to have the opportunity to pass their words and message along:
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