Self-management

Coping and support

Dealing with the possibility of hearing loss and facial paralysis and deciding which treatment would be best for you can be quite stressful. Here are some suggestions you may find helpful:

  • Educate yourself about acoustic neuroma. The more you know, the better prepared you'll be to make good choices about treatment. Besides talking to your doctor and your audiologist, you may want to talk to a counselor or social worker. Or you may find it helpful to talk to other people who've had an acoustic neuroma and learn more about their experiences during and after treatment.
  • Maintain a strong support system. Family and friends can help you as you go through this difficult time. Sometimes, though, you may find the concern and understanding of other people with acoustic neuroma especially comforting.

Your doctor or a social worker may be able to put you in touch with a support group. Or you may find an in-person or online support group through the Acoustic Neuroma Association.

Aug. 26, 2017
References
  1. Vestibular schwannoma (acoustic neuroma) and neurofibromatosis. National Institute on Deafness and Other Communication Disorders. http://www.nidcd.nih.gov/health/hearing/pages/acoustic_neuroma.aspx. Accessed May 24, 2017.
  2. Acoustic neuroma. American Hearing Research Foundation. http://american-hearing.org/disorders/acoustic-neuroma/. Accessed May 24, 2017.
  3. AskMayoExpert. Acoustic neuroma. Rochester, Minn.: Mayo Foundation for Medical Education and Research; 2017.
  4. Park JK, et al. Vestibular schwannoma (acoustic neuroma). https://www.uptodate.com/contents/search. Accessed May 24, 2017.
  5. Quinones-Hinojosa A, ed. Vestibular Schwannomas: The Role of Stereotactic Radiosurgery. In: Schmidek and Sweet's Operative Neurosurgical Techniques. 6th ed. Philadelphia, Pa.: Saunders Elsevier; 2012. https://www.clinicalkey.com. Accessed Nov. 15, 2014.
  6. Lalwani AK, ed. Vestibular schwannoma (acoustic neuroma). In: Current Diagnosis & Treatment in Otolaryngology—Head & Neck Surgery. 3rd ed. New York, N.Y.: The McGraw-Hill Companies; 2012. http://accessmedicine.mhmedical.com. Accessed May 24, 2017.
  7. Acoustic neuroma. International Radiosurgery Association. http://www.irsa.org/acoustic_neuroma.html. Accessed May 24, 2017.
  8. Levis, AG, et al. Mobile phones and head tumors. The discrepancies in cause-effect relationships in the epidemiological studies - how do they arise? Environmental Health. 2011;10:50.
  9. Support group overview. Acoustic Neuroma Association. https://www.anausa.org/support-group-overview. Accessed May 24, 2017.
  10. Riggin EA Allscripts EPSi. Mayo Clinic, Rochester, Minn. May 24, 2017.
  11. Riggin EA. Allscripts EPSi. Mayo Clinic, Rochester, Minn. May 26, 2017.
  12. Louis, ED, et al., eds. Acoustic neuroma and other skull base tumors. In: Merritt's Neurology. 13th ed. Philadelphia, Pa.: Wolters Kluwer; 2016. http://www.ovid.com/site/index.jsp. Accessed June 30, 2017.
  13. Proton therapy. American Brain Tumor Association. http://www.abta.org/brain-tumor-information/publications/. Accessed May 30, 2017.
  14. Link MJ (expert opinion). Mayo Clinic, Rochester, Minn. June 10, 2017.
  15. Post treatment summary. Acoustic Neuroma Association. https://www.anausa.org/post-treatments/post-treatment-summary. Accessed May 30, 2017.