Vascular Malformation Specialty Clinic at the Gonda Vascular Center

By Mayo Clinic Staff

Overview

The Vascular Malformation Specialty Clinic in the Gonda Vascular Center at Mayo Clinic's campus in Minnesota provides an interdisciplinary approach to the evaluation and treatment of adults and children with vascular malformations.

Vascular malformations form as a result of abnormal blood and lymphatic blood vessel development. Vascular malformations are often present at birth, but they may become apparent at different ages. Treatment depends on the severity of the condition and the area of involvement. Signs and symptoms may vary depending on the specific malformation.

Doctors and surgeons in the Vascular Malformation Specialty Clinic have expertise in providing the most appropriate care for people with vascular malformations, including medical and surgical treatments for these complex conditions. These specialists have extensive experience in evaluating and treating people with vascular malformations. Mayo Clinic has been designated as a Sturge-Weber Foundation Center of Excellence.

Adults and children with vascular malformations who come to the Vascular Malformation Specialty Clinic are usually seen by many specialists in vascular malformations. The specific specialists involved in the evaluation, diagnosis and treatment depend upon the specific vascular malformation and the person's individual needs. People usually are seen by a team of doctors simultaneously during their initial appointment. Referrals with other members of the Vascular Malformation Specialty Clinic may be necessary after the initial appointment.

An interdisciplinary team of doctors experienced and trained in treating children works together to evaluate, diagnose and treat children with all types of vascular birthmarks and malformations at Mayo Clinic's campus in Minnesota. Doctors may evaluate the child, order several tests and develop a treatment plan.

Staff in Mayo Clinic Children's Center and the Gonda Vascular Center may be involved in the care of children with vascular malformations.

Services

Staff in the Vascular Malformation Specialty Clinic evaluates and treats a wide array of vascular malformations and related syndromes.

Vascular malformations and related syndromes include:

  • Arteriovenous malformations (with high-flow arteriovenous connections)
  • Capillary malformations/port-wine stains
  • Congenital arterial and venous aneurysms
  • Lymphatic malformations
  • Venous malformations
  • Glomus tumors/glomangiomas
  • Spindle cell hemangioendothelioma
  • Cutis marmorata telangiectatica congenita
  • Sturge-Weber syndrome
  • Kasabach-Merritt phenomenon
  • Klippel-Trenaunay syndrome
  • CLOVES syndrome
  • Maffucci syndrome
  • Parkes Weber syndrome
  • Proteus syndrome
  • Servelle-Martorell syndrome
  • Capillary malformation-venous malformation syndrome
  • Capillary malformation-arteriovenous malformation (CM-AVM) syndrome
  • Megalencephaly-capillary malformation syndrome (M-CM)
  • Diffuse capillary malformation with overgrowth (DCMO)
  • Other vascular malformation overgrowth syndromes, including PIK3CA-related disorders
  • Blue rubber bleb nevus syndrome

Vascular tumors of infancy include:

  • Infantile hemangiomas
  • Congenital hemangiomas
  • Infantile hemangioendothelioma
  • Kaposiform hemangioendothelioma
  • Tufted angioma

Most central nervous system vascular malformations are not managed in the Vascular Malformation Clinic but are evaluated by the Department of Neurologic Surgery. Pulmonary malformations such as hereditary hemorrhagic telangiectasia and Osler-Weber-Rendu disease are managed by the Division of Pulmonary and Critical Care Medicine and the Division of Pediatric Pulmonology. Congenital lymphedemas are managed at the Lymphedema Clinic in the Division of Cardiovascular Diseases.

Research

The Vascular Malformation Specialty Clinic participates in a variety of innovative research activities. Research may include:

  • Evaluation and treatment of complications of Klippel-Trenaunay syndrome and other overgrowth syndromes
  • Regenerative medicine in vascular anomalies
  • Bone health in patients with overgrowth syndromes
  • Biomarkers in vascular malformations
  • Risk factors for the development of infantile hemangiomas

See a list of publications from Mayo doctors on vascular malformation on PubMed, a service of the National Library of Medicine.

Appointments

To make an appointment, call 507-266-6700 between 8 a.m. and 5 p.m. Central time, Monday through Friday.

Physician staff

Vascular surgery
Thomas C. Bower , M.D.
Manju Kalra, M.B.B.S.

Vascular medicine
David J. Driscoll, M.D.
Megha M. Tollefson, M.D.

Ophthalmology
Elena Bitrian, M.D.

Orthopedic surgery
Franklin H. Sim, M.D.
Peter S. Rose, M.D.

Pediatric orthopedic surgery
William J. Shaughnessy, M.D.
Anthony A. Stans, M.D.

Pediatric surgery
D. Dean Potter Jr., M.D.

Plastic surgery — pediatric and adult
Samir Mardini, M.D.
Steven L. Moran, M.D.

Pediatric Otorhinolaryngology
Karthik Balakrishnan, M.D., M.P.H.
Shelagh A. Cofer, M.D.

Physical medicine and rehabilitation
Robert W. DePompolo, M.D.

Vascular and interventional radiology — pediatric and adult
Emily C. Bendel, M.D.
Haraldur Bjarnason, M.D.
Michael A. McKusick, M.D.
Padraig (P Pearse) P. Morris, M.B., B.Ch.
David A. Woodrum, M.D., Ph.D.

Pediatric dermatology
Dawn Marie R. Davis, M.D.
Megha M. Tollefson, M.D.

Clinical genomics
Jennifer L. Hand, M.D.

Pediatric neurology
John B. Bodensteiner, M.D.
Gesina F. Keating, M.D.

Pediatric neurosurgery
Nicholas M. Wetjen, M.D.

Pediatric cardiology
David J. Driscoll, M.D.

Diagnostic radiology
Mai (Mai-Lan) L. Ho, M.D.
Amy B. Kolbe, M.D.
Thanila A. Macedo, M.D.