Individuals with suspected or confirmed Von Hippel-Lindau (VHL) disease are seen in Mayo's VHL Clinic by a highly skilled team of experts. This experienced team includes a medical geneticist, ophthalmologist, urologist and other specialists as dictated by the particular problem. Additional specialists may include a nephrologist, endocrinologist or neurologist, among others.

VHL is a disorder characterized by multiple tumors, which can be cancerous or noncancerous. Hemangioblastomas of the central nervous system (brain and spinal cord) are some of most common tumors found in VHL. Other tumors include pheochromocytomas, and cysts in the kidney and pancreas. The most common cancerous tumors found in people with VHL are clear cell renal carcinomas and neuroendocrine pancreatic tumors.

Our personalized, team approach in Mayo's Von Hippel-Lindau Clinic ensures the highest quality of care.

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