Adult Congenital Heart Disease Clinic Overview

Adults with congenital heart disease find the specialized care they need at the Adult Congenital Heart Disease Clinic. You'll meet with experts who listen to your concerns, assess your health and offer care options based on your needs. They have specialized training in diagnosing and treating all congenital heart diseases, including the serious, complex or rare. At Mayo Clinic in Florida, people with Marfan syndrome are seen at the Adult Congenital Heart Disease Clinic.

Each year doctors at Mayo Clinic in Arizona, Florida and Minnesota evaluate and treat nearly 12,000 adults with congenital heart disease. Our heart specialists are nationally recognized for expertise in cardiology and cardiovascular surgery. This widely respected team is dedicated to advancing the field through researching, adopting new technology and teaching the next generation of health care professionals.

A team focused on you

Our adult congenital heart disease team includes doctors trained in heart disease (cardiologists) and heart surgery (cardiovascular surgeons). They work closely with specialists in transplantation, pulmonary hypertension, liver disease (hepatology), clinical genomics, fetal and maternal care, and other areas. No matter your condition or the symptoms you're living with, this multidisciplinary team can help you. These experts focus their collective knowledge on finding solutions.

With Mayo Clinic's emphasis on collaborative care, specialists at each of its sites — Arizona, Florida and Minnesota — interact closely with one another.

A personalized treatment plan

Together your Mayo Clinic care team works with you to develop a treatment plan tailored to your condition, goals and needs. There is an ever-growing group of adult congenital heart disease survivors. Many of these people are living with complex heart rhythm disorders. At the Adult Congenital Heart Disease Clinic, they'll be under the care of heart rhythm experts who helped establish national guidelines for the American Heart Association, the Heart Rhythm Society and the American College of Cardiology.

Throughout your life, your care team is available to consult on whatever concerns you have — minor surgery, pregnancy, heart surgery. Our cardiologists, nurse coordinator, nurse practitioners, social worker and nurses create a seamless experience, offer advice on your condition and provide continuing care. Clinic nurses are available by phone to answer your questions. If you wish, your cardiologist will share your treatment plan with your primary doctor and talk through any questions. At Mayo Clinic in Rochester, Minnesota, you may be seen in the Cardiovascular Obstetrics Clinic.

People with congenital heart disease who come to Mayo Clinic benefit from our continual innovations in surgery, technology and processes. Our doctors and heart surgeons use advanced imaging, therapies and transcatheter procedures, as well as valve prostheses. They also use state-of-the-art heart rhythm therapies and methods that repair heart defects without opening the chest wall — an approach called minimally invasive heart surgery.

People who come to Mayo Clinic with a serious or complex heart defect that can't be repaired might benefit from the Heart Transplant Program. Our transplant specialists use advanced technology, specialized procedures and teamwork to help people with serious heart diseases.

Nationally recognized expertise

Mayo Clinic campuses are nationally recognized for expertise in cardiology and cardiovascular surgery:

  • The Adult Congenital Heart Disease Association (ACHA) has designated the Adult Congenital Heart Disease (ACHD) Clinic at Mayo Clinic's campus in Rochester, Minnesota, as an ACHA/ACHD Accredited Comprehensive Care Center.

    This accreditation was achieved because the ACHD Clinic meets personnel requirements, offers specific medical services, and uses policies and procedures that help ensure the highest level of care for adults with congenital heart disease. This accreditation also signifies that Mayo Clinic has doctors with special expertise in diagnosing and treating congenital heart disease.

  • Mayo Clinic in Rochester, Minnesota, Mayo Clinic in Phoenix/Scottsdale, Arizona, and Mayo Clinic in Jacksonville, Florida, are ranked among the Best Hospitals for heart and heart surgery by U.S. News & World Report.
  • Mayo Clinic Children's Center in Rochester is ranked the No. 1 hospital in Minnesota, and the five-state region of Iowa, Minnesota, North Dakota, South Dakota and Wisconsin, according to U.S. News & World Report's 2023-2024 "Best Children's Hospitals" rankings.

Mayo Clinic in Rochester, Minn., Mayo Clinic in Jacksonville, Fla., and Mayo Clinic in Phoenix/Scottsdale, Ariz., are ranked as high performing for aortic valve replacement and transcatheter aortic valve replacement (TAVR) procedures by U.S. News & World Report. "High performing" is a designation given to the top 16% of TAVR programs across the nation (600+ programs). U.S News & World Report ranked hospitals for this procedure for the first time in 2022-2023.

Mayo Clinic is top-ranked in more specialties than any other hospital and has been recognized as an Honor Roll member according to the U.S. News & World Report's 2023-2024 "Best Hospitals" rankings.

Research to improve diagnosis and treatment

Interventions for congenital heart disease and related conditions are rapidly evolving. Our world-class physician-scientists and researchers have long been leaders in congenital heart disease research in new diagnostic tests, appropriate timing for treatments and new treatments for congenital heart disease. Research projects include:

  • Advancing care of adults with complex heart rhythm disorders.
  • The effect of earlier atrioventricular valve intervention on survival after the Fontan operation.
  • Sudden cardiac death in adults with Eisenmenger syndrome.
  • A rare cause of valvular disease.
  • Congenital heart disease and reproductive risk.

Ask your doctor if you might be eligible for any of the active clinical trials in congenital heart disease. Some Mayo clinic-initiated trials are available only to people being treated at Mayo Clinic.

Our researchers have published hundreds of articles describing long-term results of treatments for many congenital heart diseases. See a list of publications about congenital heart disease by Mayo Clinic doctors on PubMed, a service of the National Library of Medicine.

Learn more about research in the Cardiovascular Research Center.

Appointments

You may be referred by your primary doctor, or you may make an appointment without a referral. Not all services may be available at all locations. Please confirm when you request an appointment.