Marfan Syndrome Clinic

By Mayo Clinic Staff

Mayo Clinic offers an experienced, integrated team of Mayo doctors in the Marfan Syndrome and Thoracic Aorta Clinic at Mayo Clinic's campus in Minnesota. Doctors at Mayo Clinic's campus in Minnesota care for people of all ages with Marfan syndrome and related disorders. Experienced staff in the Adult Congenital Heart Disease and Marfan Syndrome Clinic at Mayo Clinic's campus in Florida provides care for adults with Marfan syndrome or related disorders.

Mayo Clinic is developing telemedicine tools to connect clinics at Mayo Clinic's campuses in Arizona, Florida and Minnesota. Mayo Clinic's campus in Arizona is expected to be the first to use telemedicine in the care of people with Marfan syndrome and related disorders.

At Mayo Clinic, a multidisciplinary team of doctors trained in heart conditions (cardiologists), heart and blood vessel surgery (cardiovascular surgeons), cardiac imaging, hereditary conditions (medical geneticists), eye conditions (ophthalmologists), bone and muscle surgery (orthopedic surgeons), and other areas collaborate to provide your care. Cardiovascular care and genetics are the most commonly used services, but you may need care for musculoskeletal system problems, vision problems and chronic pain.

Doctors trained in treating children with medical conditions (pediatricians) and heart conditions (pediatric cardiologists) provide care for children with Marfan syndrome and related disorders at Mayo Clinic's campus in Minnesota.

New medical and surgical treatments are being developed for Marfan syndrome and related disorders. Currently, a cure doesn't exist, but advances in medical and surgical care have greatly improved life expectancy for those with these conditions.

You'll work closely with a team of specialists to create a treatment plan that meets your individual needs. Your treatment may include medications, genetic and reproductive counseling, lifestyle changes and possibly surgery.

Research

Mayo Clinic researchers are working to improve diagnostic tests, genetic testing and treatment of Marfan syndrome. Doctors also research new surgical techniques and the outcomes of surgical treatments for Marfan syndrome.

Appointments

You may be referred by your primary doctor, or you may make an appointment without a referral. Not all services may be available at all locations. Please confirm when you request an appointment.

For appointments or more information about the Adult Congenital Heart Disease and Marfan Syndrome Clinic at Mayo Clinic's campus in Florida, call 904-953-6351 or the Central Appointment Office at 904-953-0853 from 8 a.m. to 5 p.m. Eastern time, Monday through Friday, or complete an online appointment request form.

For appointments or more information about the Marfan Syndrome and Thoracic Aorta Clinic at Mayo Clinic's campus in Minnesota, call the Division of Cardiovascular Diseases at 507-284-3994 from 8 a.m. to 5 p.m. Central time, Monday through Friday, or complete an online appointment request form.

See physician staff.

Marfan syndrome: The importance of diagnosis and treatment