Hypertrophic Cardiomyopathy Clinic

By Mayo Clinic Staff

Hypertrophic cardiomyopathy (HCM), a rare disorder, is treated by cardiovascular specialists at Mayo Clinic. Hypertrophic cardiomyopathy (HCM) is a genetic predisposition to abnormal thickening of the heart muscle and affects one in 500 Americans, making it more common than muscular dystrophy, multiple sclerosis or AIDS. HCM affects each person differently; there is no "typical" HCM patient and no standard treatment. The skilled cardiologists at Mayo Clinic's Hypertrophic Cardiomyopathy Clinic work closely with each patient, formulating an individualized treatment plan.

Mayo Clinic provides experience and expertise

Mayo Clinic's Hypertrophic Cardiomyopathy Clinic is one of the few specialty clinics in North America and one of the largest centers in the world specializing in the treatment of HCM. Its physicians treat 400 to 500 patients each year, more patients than those of any other center in the nation.

The cardiologists in the clinic have specialized training and expertise in the diagnosis and treatment of hypertrophic cardiomyopathy. A cardiologist gives each patient a comprehensive assessment to determine the appropriate therapy.

An integrated team of physicians in cardiovascular diseases, cardiac surgery, genetics and other areas works together to care for each patient with hypertrophic cardiomyopathy. If consultation is needed on a related medical problem, multiple medical specialists from many areas can be brought together to examine any problem.

In addition to medical treatment, the nurses, genetic counselors and physicians staffing the Hypertrophic Cardiomyopathy Clinic provide outstanding education and support for their patients. Cardiologists are available for consultation, and integrated communication and documentation ensures that the unique aspects of each patient's condition are considered at follow-up visits. Following the first consultation, knowledgeable clinic staff is available by phone for questions or concerns.

Treatment options include medication-based therapies, pacemakers, defibrillators, catheter-based (ablation) procedures and cardiac surgery. Cardiac surgery may include complex procedures, such as a septal myectomy, which is the surgical removal of part of the overgrown heart muscle to help restore normal blood flow.

More than 1,000 myectomies have been performed for patients with HCM at Mayo Clinic. As one of the most experienced teams in the world, Mayo Clinic physicians have observed excellent long-term outcomes. A successful operation has been shown to dramatically improve symptoms in more than 90 percent of patients. Research suggests that a subset of patients who have a myectomy live longer than they would have without the operation. For patients who have a myectomy, the survival rate at one year is 99 percent; at five years, 98 percent; and at 10 years, 95 percent. By comparison, the survival rate of patients who do not have a myectomy is 94 percent at one year; 89 percent at five years; and 73 percent at 10 years.

Family connections

Hypertrophic cardiomyopathy is a disease with a strong genetic component. When a diagnosis is made at the Hypertrophic Cardiomyopathy Clinic, your physician or genetic counselor will talk with you about the importance of screening for HCM in your family members and the role of genetic testing as a possible screening tool. Mayo's special research program in the molecular genetics of hypertrophic cardiomyopathy is exploring new discoveries related to the genetics of the disease and the implications for diagnosis and treatment. Learn more about the hypertrophic cardiomyopathy research program.

Appointments

Patients may be referred by their primary physicians or may make an appointment without a referral. To schedule an appointment in the Hypertrophic Cardiomyopathy Clinic, please call 507-538-1434.

Physician staff